Long-term stability of posttranscriptional genetic silencing of BCL11A using a shmiR vector in sickle cell disease.

Long-term stability of posttranscriptional genetic silencing of BCL11A using a shmiR vector in sickle cell disease.

Esrick EB, Lehmann L, Federico A, Vincon H, Liu B, Daley H, Dansereau C, DeOliveira SN, Everett J, Kao PC, Moore TB, Morris E, Negre H, Shaw KL, Roach GD, Ritz J, Roche AM, Silva O, Grant PE, Bushman FD, Kohn DB, Jain A, London WB, Justus DG, Armant M, Manis J, Williams DA. Blood. 2026 Aug 20;148(8):957-966. doi: 10.1182/blood.2026033871. PMID: 42233421

Publication Abstract

Sickle cell disease (SCD) is characterized by chronic hemolysis, and painful vaso-occlusive episodes (VOE). High levels of fetal hemoglobin (HbF) attenuate the disease phenotype. We used a lentivirus vector (LVV) expressing a short hairpin RNA embedded in a microRNA (shmiR) that targets BCL11A in erythrocytes to induce HbF in a first-in-human study in SCD. The purpose of the study was to assess hematopoietic stem/progenitor cells collection, transduction parameters, safety, HbF induction, and durability. Eleven eligible patients with SCD underwent hematopoietic stem cell (HSC) collection. Plerixafor-mobilized peripheral blood HSCs required for manufacturing were obtained in 1 mobilization cycle for 10 of 11 participants, and 11 of 11 patient products were successfully manufactured with a median time to release of product of 39 days. Ten patients were infused with HSCs transduced with the shmiR vector. Engraftment occurred in all 10 patients. At a median follow-up of 58 months (range, 35-82) after infusion, there were no adverse events attributed to the vector. The transduction efficiency was 93.1%. One patient demonstrated low engraftment of the transduced cells and had suboptimal HbF induction. In the remaining 9 patients, at 2 years after treatment, the peripheral blood demonstrated 71% F cells with 11.9 pg HbF per F cells, and both parameters remained stable in 9 patients with ≥48 months follow-up. All patients who had VOEs before gene therapy demonstrated sustained mitigation of pain events. These data demonstrate excellent manufacturing efficiency, efficacy and safety of targeting BCL11A using a shmiR LVV, and long-term durability of the shmiR vector, leading to a pivotal, multisite, phase 2 trial that is currently underway (NCT05353647). This trial was registered at www.clinicaltrials.gov as NCT03282656.